And the doctor said….

My immunologist, who is very hands off (We call him Dr. Hands Off) was very happy with my progress today. My IgG level came back at 900! The SCIG (subcutaneous immunoglobulin) infusions are working!

This means I am not fighting off MRSA infections or other dreaded infections, and am in what he calls a “sweet spot.” He admitted today that he was afraid the AMS (acute meningitis syndrome) that I was getting each time I had the IVIG would continue with the SCIG. It isn’t, so that’s a relief. Brain swelling is not good.

I still get the brain fog. My doctor calls that “getting old.” Thanks, Dr. Hands Off. Heh.

He also liked my term for the day after side effects: gamma flu. That’s about what it’s like.

I have been really tired lately, then realized I haven’t been taking my Vitamin B. So here I am, an advocate for Vitamin B! Do it people, so you don’t have to sleep 16 hours instead of 12.

Welcome to life with CVID.


About Natalie R. Collins

Natalie has more than 30 years writing, editing, proofreading and design experience. She has written 20 books (and counting), has worked for the Sundance Film Festival, and as an investigative journalist, editor, and proofreader. She embraces her gypsy-heart and is following her new free-thinking journey through life. Follow her as she starts over and learns a bunch of life's lessons--some the hard way.
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